5th Annual Wiedemann-Steiner Syndrome Golf Outing and Luncheon

Please join us to support the Wiedemann-Steiner Syndrome Foundation with 18 holes of golf and a luncheon at Whitetail Ridge Golf Course!

What is Wiedemann-Steiner Syndrome?

Wiedemann-Steiner syndrome is a rare genetic disorder with approximately 2,000 diagnosed cases world wide. Wiedemann-Steiner Syndrome may be related to global developmental delays, sleeping difficulties, feeding and digestion complexities, unusual facial features, short/petite stature, hypotonia, dental issues, hairy elbows, long eyelashes, etc. Those affected with Wiedemann-Steiner Syndrome often receive physical, occupational, speech, feeding, and/or behavioral therapies.

This outing is in honor of our 8 year old warrior Makenzie. All donations will be sent to the Wiedemann-Steiner Syndrome Foundation to support continued critical research.

To learn more about Wiedemann-Steiner Syndrome, please visit wssfoundation.org.

If you're unable to attend and would like to donate, there is an option to do so under the ticket section.

Golf:

Join us for an 8:00 am shotgun scramble on Saturday, September 20st, 2025. Individual Golf tickets are $150 or grab your friends/family members to create a foursome and purchase a group ticket for $600. Price of ticket includes:

Golf, cart, and range balls

Prizes for longest drive, closet to the pin, and more!

Hole-in-One Contests!

Luncheon to follow

Donation to the Wiedemann-Steiner Syndrome Foundation

*Hole sponsorship is available for $150 per hole. You can purchase a sponsorship in the ticket section. Please email Adam Macek (adam.macek@gmail.com) for further details.

*Last day to purchase tickets will be Thursday, September 11th. Make sure to sign up ASAP to ensure your spot!

Luncheon:

All non-golfers are welcome to join us for a luncheon at the clubhouse beginning at 12:30 pm. Individual ticket price is $40. Price of ticket includes:

Backyard BBQ Buffet (see below) and a donation to the Wiedemann-Steiner Syndrome Foundation.

Grilled Angus Beef Burgers

BBQ Chicken Breasts

Baked Beans and Potato Salad

Garden Salad

*Children are welcome to join the luncheon. No ticket purchase is necessary unless they will be participating in the Backyard BBQ Buffet. Hot dogs will be available to purchase for children at the event.

*Alcoholic beverages can be purchased at the clubhouse bar.

*Prizes will be raffled off at the luncheon!

*If the course is closed due to weather conditions, the luncheon will still be held and golfers will be refunded $90.

*Last day to purchase tickets will be Thursday, September 11th. Make sure to sign up ASAP to ensure your spot!

Organized by

Adam and Linsay Macek